We were told that we needed to enjoy as much time as we could with him. That's right we were told that Wes COULD DIE. Being told that your child might not live is horrible, your whole life crashes down around you and it makes it hard to breathe let alone think.
This on top of my husband deploying was a really bad time. We knew that at 3 months old that when my husband deployed that it could have been the last time he saw him alive.When Wes was born he seemed fine a nice pink color, good set of lungs, all his fingers and toes. Then on his 1st full day of life he had his circumcision. Afterwards, things started to get a bit weird. He started to turn yellow, and became jaundice.
He also was having problems keeping his body temp. up. He stayed that way for about 2 weeks after we left the hospital but he was still perfect. Yellow, but perfect. Then something started happening. We were told to give him as much skin to skin time to try and raise his body temp. We always had him in just a diaper on my or my husband's chest wrapped in a blanket.
We
just wanted him to get warm. Then the feedings started to go wonky. He
started vomiting all his food up, he didn't eat, and he became really
weak and just slept for close to 20 hours a day. The house, the chair,
the sofa everything smelled of regurgitated milk. We were scared and
horribly worried, and during all this we still had Alice to think about
and take care of
.Thank goodness my parents were close by. We had to go to the doctors at least every other day for weight checks and formula changes.
We stopped breast feeding, he went on I think 5 or 6 different formulas, but he just kept vomiting and in turn he just kept loosing weight. He soon became nothing but skin and bones, he couldn't even lift his arms.Every other day we would go to the doctor checking his weight changing his formula. We were sent to a pediatric surgeon, who in turn sent us to the ER for an MRI and a barium exam. It was discovered that Wes had an underdeveloped esophagus, which is why everything he had would come back up. He was given anti ulcer medication for his throat. At 3 months old he had just gotten over his birth weight.
At 5 months old we found the first of the formulas that started to stay in his system. Similac Soy Formula. Then we switched it and started having even more success in Gerber Soy Concentrate formula. As it turns out liquid formula worked better then powder. He finally was able to go to the doctor once a week and then once every 2 weeks, and then once every 3 weeks. Through it all he was always smiling. At 8 months old Wes went to the doctors again and we were so happy to hear that he made a complete turn around. The doctors actually told me that they were not expecting him to make it as far as he did.
My little boy my little fighter was finally getting better. He was finally able to start eating baby food and he has been thriving since. So much so that my little guy is now in the 85% for weight. At 11 months he started big people food, and working on using a sippy cup. Wes is now 13 months old and in 1-3 more months he will get to meet his daddy again and hold his hand, and interact with him other then just sleeping on his chest.
So there it is there is the story. Sorry it was so long. We now know that he was born allergic to milk, even milk from me. I just wonder if he didn't have all these other problems that masked the allergy how much faster he would have gotten better. I know that I had done the best for him without knowing all the facts. He is now a happy little guy, chasing his big sister around the living room trying to get hugs. And chasing me with his bowl trying to get more snacks (dairy free of course).
No comments:
Post a Comment