I figured since I started this blog for my son, so when he is older he has something that can help him, and something that can help others, I should probably tell you about my son.
We were told that we needed to enjoy as much time as we could
with him. That's right we were told that Wes
COULD DIE. Being
told that your child might not live is horrible, your whole life
crashes down around you and it makes it hard to breathe let alone think.
This on top of my husband deploying was a really bad time. We knew that
at 3 months old that when my husband deployed that it could have been
the last time he saw him alive.When Wes was born he
seemed fine a nice pink color, good set of lungs, all his fingers and
toes. Then on his 1st full day of life he had his circumcision.
Afterwards, things started to get a bit weird. He started to turn
yellow, and became jaundice.
He also was having problems keeping his
body temp. up. He
stayed that way for about 2 weeks after we left the hospital but he was
still perfect. Yellow, but perfect. Then something started happening. We were told to give him as much skin to skin time to try and
raise his body temp. We always had him in just a diaper on my or my
husband's chest wrapped in a blanket.

We
just wanted him to get warm. Then the feedings started to go wonky. He
started vomiting all his food up, he didn't eat, and he became really
weak and just slept for close to 20 hours a day. The house, the chair,
the sofa everything smelled of regurgitated milk. We were scared and
horribly worried, and during all this we still had Alice to think about
and take care of

.
Thank goodness my parents were close by. We had to go to the doctors at
least every other day for weight checks and formula changes.
We stopped
breast feeding, he went on I think 5 or 6 different formulas, but he
just kept vomiting and in turn he just kept loosing weight. He soon
became nothing but skin and bones, he couldn't even lift his arms.Every other day we would go to the
doctor checking his weight changing his formula. We were sent to a
pediatric surgeon, who in turn sent us to the ER for an MRI and a barium
exam. It was discovered that Wes had an underdeveloped esophagus, which
is why everything he had would come back up. He
was given anti ulcer medication for his throat. At 3 months old he had just gotten
over his birth weight.
At 5 months old we found the first of the
formulas that started to stay in his system. Similac Soy Formula. Then
we switched it and started having even more success in Gerber Soy
Concentrate formula. As it turns out liquid formula worked better then
powder. He finally was able to go to the doctor once a week and then
once every 2 weeks, and then once every 3 weeks. Through it all he was
always smiling. At
8 months old Wes went to the doctors again and we were so happy to hear
that he made a complete turn around. The doctors actually told me that
they were not expecting him to make it as far as he did.
My little boy
my little fighter was finally getting better. He was finally able to
start eating baby food and he has been thriving since. So much so that
my little guy is now in the 85% for weight. At 11 months he started big people food, and working on using a sippy cup. Wes is now 13 months old
and in 1-3 more months he will get to meet his daddy again and hold his
hand, and interact with him other then just sleeping on his chest.
So
there it is there is the story. Sorry it was so long. We now know that he was born allergic to milk, even milk from me. I just wonder if he didn't have all these other problems that masked the allergy how much faster he would have gotten better. I know that I had done the best for him without knowing all the facts. He is now a happy little guy, chasing his big sister around the living room trying to get hugs. And chasing me with his bowl trying to get more snacks (dairy free of course).